This topic is about a person who has lived with complex congenital urological conditions and now has a urostomy. Born in the 1960s with externalized urological organs due to a suspected prenatal hormonal imbalance, this individual faced numerous medical challenges from a young age. Despite multiple reconstructive surgeries during childhood, the issues persisted, leading to the removal of the bladder and part of a kidney in their early teens. Over time, their condition worsened, resulting in chronic glomerular necrosis and stage-2 kidney disease, with repeated transfusions and near-sepsis bringing them close to needing dialysis. About ten years ago, they underwent a life-saving urostomy (ileal conduit) surgery, which they have mixed feelings about but acknowledge as crucial in avoiding dialysis. Having experienced over 20 surgeries and spent several years in hospitals, they have started documenting their journey in a late-night blog, encouraged by doctors and a psychiatrist who believe sharing their story could help others.

Here are some pieces of advice and insights shared by others:

1. Writing & Sharing: People encourage the individual to continue writing, perhaps even a full book, as their story is inspirational and could help others.

2. Community Support: Members of the community emphasize that this platform is a safe space for sharing stories, revelations, and practical advice, reminding the individual that they are not alone.

3. Identity & Outlook: Drawing from personal experiences, one member shares that an ostomy does not have to define a person and encourages focusing on life beyond the appliance.

4. Self-Care Encouragement: Responses commend the individual's resilience and remind them to keep prioritizing their health and well-being.