This topic is about a person who has been living with Crohn’s disease for eight years and underwent a total colectomy in 2011, resulting in an ileostomy. They are exploring the possibility of reversing the ileostomy, but their surgeon has cautioned that Crohn’s disease often recurs if a reversal with an internal pouch is attempted. They are also dealing with frequent stoma prolapse and are seeking advice and experiences from others in similar situations.

Here are some insights and advice shared by others:

1. Many surgeons are hesitant to perform reversals or create internal pouches for Crohn’s patients because the disease can unpredictably return, which might lead to further complications and the need for additional surgeries.

2. The person is curious about how life is for others who have lived with an ileostomy for many years, seeking to understand the long-term experience.

3. They are also interested in knowing if others experience stoma prolapse, noting that their stoma protrudes without a belt but retracts when lying flat.