Hi everyone, happy Christmas!
Just to introduce myself, I am Ram, 33 years old, and have had Crohn's for 8 years. I had my surgery in November 2011, removed all my colon, and have an ileostomy bag. It looks like it may be permanent. I wanted to find out if anyone had a reversal done with Crohn's disease. I have been advised by my doctor that if you have a reversal and have an internal pouch, the Crohn's comes back again in a few years' time. I have also been having prolapse very often; is that common?
I just need more advice; I thought I may find my answer here.
Many thanks
ram
Dec 20, 2011 5:47 pm
ron in mich
Dec 21, 2011 3:56 pm
Hi Ram, I've had my ileo now for 26 years, and what I heard is most doctors don't like to do reversals or internal pouches with Crohn's as the disease can come back any time and cause more problems and need surgery. Good luck, Ron.
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ram
Dec 21, 2011 7:21 pm
Thank you, Run. If I may ask, how do you find it with ileo? Do you have a prolapse sometimes? If I don't wear a belt, the stoma comes out and I have to lay flat on the ground and it goes back in again. Many thanks.
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