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41,403 members
Jan 17, 2012

Small Stomas, Big Hearts: My Surgery Journey and Recovery

This topic is about someone who recently underwent surgery to create a temporary ileostomy and form a J-pouch, with plans for a reversal in March. They express gratitude for the community's support, which helped ease their fears before the surgery. Here are some key points and advice shared by the community:

- The surgery took place on November 17 and was successful, though recovery is still ongoing.
- The person is experiencing frequent, liquid output from the stoma, leading to a weight loss of about 9.5 kg (1½ stone).
- Despite the surgery being more extensive than a total colectomy for ulcerative colitis, pain management has been easier due to better pre-surgery health.
- The reversal, or "hook-up," is scheduled for March and is expected to be a minor procedure since the pouch is already formed.
- The individual is excited about using their back passage for the first time in five years and is open to answering questions from others.

Advice and insights from the community include:

1. Reversal expectations:
- Many members find the stoma take-down to be a quick and straightforward procedure compared to the initial surgery, with the hardest part already completed.

2. Coping with liquid, high-volume ileostomy output:
- Some dietary suggestions to thicken output include peanut butter and marshmallows.
- Specialized ileostomy gelling or absorbent bags can help manage liquid output and reduce the frequency of emptying, making life a bit easier.

3. J-pouch recovery timeline:
- It may take up to a year for the J-pouch to settle and function optimally, based on shared experiences.

4. Emotional support:
- Staying positive and connected with the online community is highly encouraged as it plays a crucial role in the recovery process.
See full discusison
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