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May 10, 2012

Life as an Ostomate with Limited Mobility

This topic is about the experiences of an ostomate living in Melbourne who has limited mobility and uses an electric wheelchair. They have been living with a colostomy and a suprapubic catheter since January 2010. Here are some insights and advice shared by others in similar situations:

1. Emotional support:
- Many people emphasize the importance of humor and laughter to help cope with daily challenges and aid in recovery.
- Encouragement to continue blogging and sharing experiences, as the community is there for mutual support.

2. Local networking:
- It's recommended to reach out to "Mooza," a helpful and active ostomate in Melbourne.
- Consider connecting with the Block Arcade Colostomy Association in Melbourne for local support and friendships.
- Mooza is open to meeting up, usually around midday, and can offer tips on supplies.

3. Output management:
- For managing continuous liquid output, some suggest using Ilea Gel or Ileo Gel, which are stool-thickening sachets available in Australia and the USA, to help reduce the noise and movement in the pouch.

4. Adhesion and pain relief:
- One person found success with treatments at university acupuncture clinics, where students perform procedures like laser or dry-needle acupuncture under supervision, often at a lower cost.

5. General practical tips:
- Don't hesitate to ask local ostomates for advice on supplies or product recommendations.
- Training the stoma to be more predictable, such as aiming for output at home, might help reduce incidents in public, though results can vary for each person.

The originator also shares that they miss having male friends and are hopeful to meet female friends or other ostomates nearby who understand their challenges. They value laughter and fun in their interactions.
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