Life as an Ostomate with Limited Mobility

This is my first blog. I'm unsure what to write after browsing through other Ostomates' blogs. As you all may be aware from my profile, I function with very strict mobility and have an SPC too. Travel is no longer on my list, but short trips to cinemas, lunch meals, or coffee mornings are still on the agenda. I have 34 hours a week of special care to get me ready for the day. Would love to meet up with ostomates in similar conditions. I've been an Ostomate since January 2010. Still having some problems because I can't move about...always sitting in the electric wheelchair, and it makes it harder to find a good male friend, which I miss. Got plenty of GFs, but still looking for true female friends in the same or general Ostomatic condition. I like to laugh and have fun with either gender around the Melbourne region.

Your blog is great. It is open and honest. I am not confined like you are. I do have an ileostomy, got her in November of last year. Laughing is very important in recovery or just to make the day better. I am a big fan of laughter. I hope to read more blogs from you. Sending you lots of sunshine and rainbows and some giggles your way. Hope you find some mates that you can hang with soon.
Mandy

Thank you, Reefus! It's in the early morning, 0338 o'clock, and I can't sleep, maybe because of a special Mother's Day. Bubbles, my colostomy, isn't active tonight; she is a very moody female and often makes me end up with an obstruction in the hospital. I hate when she behaves badly... haha, I'm sure many of you have similar stories to tell. It would be nice to hear from anybody in Melbourne for binding a friendship or just kidding around. I will check the comments and see who is around my area on my page. Well, I hope you are having a good sleep or are off for one soon, for the ones across the miles. Cheerio for now and God's blessing xxxooo

Schneckerm88...Helga the Horrible is the name of my stoma. She is quite active all the time. She likes to talk to me at the most inconvenient times: lawyers' office, doctors' office, library. She isn't prejudiced about where she starts a conversation. Hahaha...sorry to hear about the obstruction. I have been very lucky and not had one. My output is always liquidy. As for a Melbourne mate, have you looked up Mooza? She is in Melbourne and is a very wonderful person with an awesome personality. She would be a good mate. Good luck, and I hope you have a wonderful day.

Reefus, nice to hear from you even though it isn't the best of circumstances. You are having a bad time, and I just want to cheer you up by telling you that it will get better again. I'm lucky to have never had Bubbles acting up in public; she is a night fling! Thanks for sharing and giving me a Mooza contact... I will try to look her up when time allows it. Today I'm off to an adult day center called the Survivors. I'm the only O there. We started many years ago as a group in their 40s with physical disabilities. I love to mingle and share everyday ups and downs with my friends. But now that I've found this MeetanOstomate, I'm even happier. Oh, you said that your output is all liquid... funny, so is mine, because it has to be. My ileum is paralyzed, and this means plenty of fluids as well as laxatives. Hope it helps you knowing you're not alone! But you must train Helga to behave and do her business at home: good luck and all the best wishes :D from down Melbourne xo

My Ostomy Journey: Jearlean | Hollister

Right, you 21 who have been talking about me? Mandy would have to say the nicest things ever... thanks, Mandy. Moooo hahaha, yes, I live in Melbourne. Um, Sneck matey, you know I'm gonna have to shorten that name already; it's not to be horrible. I'm not known for my typing skills on here or anywhere else. Necker, there you go, I feel better already. Yes, I left you a quick message; I just got back from the beach, and my dog was being a little shit, so hahahahahahah... too bad I'm not a male, darlz. If you've got enough GFs and not enough male friends, try and pop in around 12 - 2 PM, and any time all around, I'm being bad lately and have been slack on getting on here, sharing my wisdom and really bad answers that I check after entering and think, "WTH am I talking about?" You have what, SPC? Hmm, sorry, I don't know what that is; it's surely not our canned food, right? I do volunteer a day or two of work, well, not for the last 3 months after another SHIT operation. My adhesion pain is back, yes, in my back, and I have run out of things to come up with to help. I am, though, looking at acupuncture uni campuses in the city. I'm having some laser acupuncture, and the DR isn't very nice, and I prefer the dry needle, but as I'm limited in the ole money, I will check a campus, and they can practice all they want on me. Great to meet a Melb. person. I have another young guy I'm still in touch with; he is just over the bridge from me, Westgate. You'd think we would have met up after 3 years, but he is 24, HEHEHEHEH, and has been reversed but is having a bad time with it. If you are a member of The Block arcade colostomy assoc, I definitely would have spoken to you :) So actually, if you want any tips or if I can help you with your supplies, give me a yell. x x x Mooza. Strange how I decided to pop in today; hope both you girls had an awesome Mummy's day, hahah. Cheers and enjoy your special day, care... Helga and Bubbles are not alone; Cherry had her moments too, and yes, liquid output, but as I always say, Ilea gel will thicken that up and take the slish slosh out. I know it's not called Ileo gel in the states, but I know you can buy it there, so girls, I'm off to wander these pages with all my wisdom and B.S. See ya... Mooze and Cherry - Chezza chez all my cut down words as usual :D Oh, how do you get that thumb on here? I'm a bit jealous. xx

Mooze, I must have slept the last 2 years in school, for your lingua is not known to me. A SPC is a suprapubic catheter, which has a small stoma where the catheter guides through into the bladder, and you wear a bag. In my case, I am also connected to a 4-litre bottle which sits under my wheelchair, and it's called Arthur, because I pee like a man with his little (am I allowed to say dick?). I'm proud to say all my functions are outside my body, and my undercarriage is very clean. All is well until it falls into maintenance criteria. Sorry about my English... picked it up year by year since I've been in Aussie Land! No school. Nevertheless, I wish you and all my ostomates a good day and night all over the world. Shauw for now :D xxxooo

I love reading all the blogs from you Australians. You guys really crack me up. Your terms and lingo are cool. I am from Arkansas and have only left the state four times in my life, just for one-week visits and whatnot. I would love to be able to travel anywhere. My most wanted trip is to Ireland to see the castles and stuff. That country has pulled at my soul since I was just 5 years old. Something calming sweeps over me when I hear an Irish person talk or Celtic music. Amazing feeling. Mooza, I really hope that you aren't upset that I passed your name on to other ostomates. You are such a positive, encouraging, and supportive person, and you are in their neck of the woods, so to speak. I really hope you are okay with it. Everybody needs a little bit of Mooza in their day. I think very highly of you and everybody on this site. We are some amazingly strong and awesome people. We are rock stars...so where are our groupies? Oh yeah, that would be our families and friends, ahahahhahhah! Wish you, schneckerm88, a most wonderful day/evening. Mandy