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May 20, 2012

Recurring Hernias with a Stoma: Seeking Advice and Support

This topic is about dealing with recurring stoma-related hernias and considering options like re-site surgery, wearing support belts, and other strategies. The person sharing their experience has had a stoma for 10 years due to Crohn’s disease and has faced multiple unsuccessful hernia repairs. They are now considering relocating the stoma and are seeking advice from others who have been through similar situations. Here are some insights and advice shared by others:

- **Hernia Belts/Support Garments**
- Many people recommend using a well-fitting hernia belt right after surgery and wearing it as much as possible during the first few months. This can help reduce fluid build-up and prevent recurrence.
- Comfizz hernia belts, available on prescription in the UK, are specifically recommended.
- Some find belts uncomfortable, especially with an ileostomy, but stress the importance of weight control and regular check-ups if belts are not worn.

- **Weight Management**
- Keeping weight down is frequently advised, as excess weight and heavy work can lead to hernia recurrence.
- Rapid weight gain due to medication can also be a risk factor, even for those who are otherwise slim.

- **Activity Precautions**
- Avoid heavy lifting, bending, and coughing without support. Be cautious of falls, as even minor incidents can aggravate repairs.
- Hernias can develop from simple actions like coughing or sneezing when tissues are weakened.

- **Surgical Considerations**
- Experiences with mesh repairs vary; some find them beneficial, while others experience issues like burning or tenderness.
- It's important to discuss options thoroughly with surgeons, as too many operations may not always be the best solution.

- **Complications & Urgency**
- A strangulated hernia can be life-threatening. Immediate medical attention is crucial if there is pain, fever, or a change in the hernia's shape.

- **Pain Control & Bowel Function**
- Limiting opioid analgesics before surgery is sometimes advised to prevent constipation and obstruction. Pain management should be done with caution and under medical guidance.

- **Psychological Support**
- Staying positive, seeking second opinions, learning from others with similar experiences, and maintaining close follow-up with healthcare providers are all emphasized as important steps.
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