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41,406 members
Jul 15, 2012

Six Months as an Ostomate: Updates and Life Changes

This topic is about someone sharing their experiences and challenges six months after having an ostomy. They discuss switching to drainable pouches, dealing with leaks and odors, and navigating significant changes in their personal life. Here are some insights and advice shared in the discussion:

- The person switched from closed-end to drainable pouches to avoid changing the pouch with every output. While this new routine is effective, it can be tough on the knees and not very practical in public restrooms.

- They experienced several leaks when the pouch outlet got blocked, causing sudden leaks that required full clothing changes and showers. Fortunately, these incidents did not happen in public.

- There was an embarrassing moment when the pouch emitted a strong odor while out for cocktails. They managed to blame it on the building's plumbing, and their friend did not suspect the stoma.

- In their personal life, one son moved out, and they are going through a divorce after discovering their spouse's long-term internet affair. They expect a challenging legal battle.

- To cope with these changes, they joined the local MS Society, attend weekly exercise and social sessions, quit habitual wine drinking, lost weight, rediscovered fashion, and reclaimed their maiden name.

- On the medical front, they consulted a surgeon and are on the cancellation list for a colostomy reversal, with surgery likely in November or December if no cancellations occur.

Advice and insights from the community include:

1. Community support is vital. The forum is always available for advice and emotional support, and maintaining humor and positivity can help during tough times.

2. Practical tips for dealing with leaks and odors:
- Always carry spare pouches and supplies when going out.
- Consider limiting food intake before social events to minimize output.
- Use deodorizing drops or other odor-control products inside the pouch to manage smells.

3. For emptying the pouch, some find it easier to do so while sitting or standing over the toilet rather than kneeling, which can reduce knee strain.

4. For those with a colostomy, irrigation might be an option to provide predictable output and reduce the need for frequent pouch emptying. It's worth discussing with a stoma nurse or surgeon.

5. Emotional encouragement is important. Many emphasize that the spouse's departure is "his loss," and they believe the person will ultimately "have the loudest laugh." Staying active, surrounding oneself with supportive people, and focusing on the upcoming reversal are all encouraged.
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