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Aug 20, 2012

Surgery or Wait? Dealing with Parastomal Hernia and Prolapse Concerns

This topic is about the difficult decision of whether to undergo surgery for a recurrent parastomal hernia and prolapsed stoma or to wait and manage the condition as it is. The person facing this decision is understandably anxious, as the stoma sometimes swells significantly, requiring them to remove the pouch and lie down until it retracts. They are worried about the possibility of the same issues returning after surgery or ending up with a retracted stoma. A second opinion from another surgeon is being sought to help decide the best course of action.

Here are some helpful insights and advice shared by others who have faced similar situations:

- The problem has been ongoing for over five years and is getting worse, often requiring the person to leave work to manage it.
- A second surgeon has advised that delaying the repair could risk a strangulated intestine, suggesting that fixing it sooner might be better.
- The stoma tends to protrude unless the person is lying flat.
- The decision will ultimately depend on where the person feels most comfortable and which surgeon they trust the most.
- The first doctor's approach now feels like a sales pitch for surgery, so staying positive while reassessing options is important.
- Recurrence is common, with some people experiencing prolapse again even after mesh repair and multiple surgeries. It's important to weigh the benefits against the possibility of recurrence.
- Some people choose non-surgical coping methods, like lying down to help the stoma retract temporarily, or deciding to leave it alone if it functions acceptably.
- Surgery should be considered a last resort. It's always an option, but if something goes wrong, there might not be much that can be done afterward. Conservative management might be preferable until absolutely necessary.
- When selecting a surgeon, it's wise to get second or even third opinions. Ask each surgeon about their specific experience with parastomal hernia and prolapse repairs, and choose the practitioner and facility that inspire the most confidence.
- Understanding contributing factors is important. For example, long-term steroid use can weaken abdominal muscles and increase the risk of recurrence.
- Maintaining a positive mindset is crucial. Many emphasize the power of attitude and support networks while navigating these decisions.
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