Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,452 members
Nov 28, 2012

Illness Concealment vs. Openness: Personal Experiences

This topic is about the experiences of someone who navigated high school while dealing with Crohn’s disease and the different approaches to handling illness disclosure. It explores the contrast between concealing a chronic illness and being open about it, and how these choices impact social interactions and personal growth. Here are some insights and advice based on these reflections:

1. Sharing your story can be powerful. Being open about your experiences, like the classmate who openly discussed her Crohn’s disease and colostomy, can help educate and support others. It can also make social interactions smoother by eliminating the need for future "big reveals."

2. If you have a talent for writing, consider using it to reach a wider audience. Writing articles, blogs, or even a book can be a great way to share your journey and help others who might be going through similar experiences.

3. Everyone adjusts to life with an ostomy differently. Some people need time to adapt, while others quickly develop a practical approach. Both responses are completely normal.

4. Volunteering as a certified ostomy visitor can be very rewarding. If you’re interested in helping others, there are training programs available to prepare you for this role.

5. Online resources can be incredibly helpful. Websites like MeetAnOstoMate.com offer peer support, and YouTube tutorials provide valuable insights into appliance changes, lifestyle tips, and maintaining a positive attitude.

6. If you want to reconnect with your open classmate, try using www.classmates.com. You can search for your school and town, look through yearbooks, and follow up once you find her name.

7. Long-term ostomy holders often share that life can remain full and enjoyable. Appliances become a routine part of life, and having a proactive attitude can make the transition easier.

8. Emotional coping is an important part of the journey. Initial feelings of grief are common, but seeing young, confident ostomates can inspire acceptance and a "get on with life" outlook.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,452 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Erectile Dysfunction
BACK IN THE SAME BOX
Hello
First Solo Bag Change and Embracing My New Body
Motorhome Off-Grid: Tips for Emptying Waste Pouches
Coloplast SenSura Flex for Waistline Colostomy
EAT HEARTY
Hollister 2-Piece System Alternatives
Odd question
OH, MY!

New Topics

Parastomal Hernia Repair Experiences and Advice
CPAP and Ileostomy Problems
Looking for Daily Irrigation Pouch Alternatives
CHECKMATE
B. Withers - Be Kind 86
An old guy looking for new things
Time Flies
Ostomy Reversal Experience and Gratitude
THE ABOMINABLE GLITCH
Big Milestone
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑