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May 27, 2013

Appreciating Life's Blessings: Finding Gratitude in My Ostomy

This topic is about finding gratitude for having an ostomy and appreciating the life it makes possible. The originator shares their journey of coming to terms with their ostomy, which has freed them from years of pain due to cancer. They now enjoy a more active life, including spending quality time with their children, and have developed a habit of gratitude for the new lease on life their ostomy provides. Here are some insights and advice shared in the discussion:

- Relationships and self-image: When it comes to dating with an ostomy, the originator believes that how you feel about the ostomy is more important than the bag itself. They have found that irrigation has made the appliance a "non-issue" for them.

- Odor control products:
1. GO RUBY GO juice powder is used for odor control, soothing the stomach, balancing acidity, and providing extra energy.
2. Odor Blocker (white bottle, green writing) is specifically for controlling gas and odor.
3. Baking soda helps lower gut acidity, ease chemo-related stomach pain, and reduce gas.

- Stoma protection: The "Stoma Stifler" is a protective device that the originator has cut into a circular shape and holds in place with a belly band and a Geniecami shaper. This setup makes them feel "invincible" and more comfortable in public by muffling gas and protecting the stoma.

- Managing a parastomal hernia: The originator mentions dealing with a hernia caused by lifting heavy weights and continuing chemotherapy, which has put major relationship plans on hold.

- Additional advice and insights:
1. Parsley for odor: Eating fresh parsley sprigs with meals can help reduce pouch odor.
2. Diet and home remedies, especially for children with an ileostomy:
- Bananas and white bread can help thicken output and reduce acidity.
- An apple-cider-vinegar drink (¼ cup ACV with warm/hot water, sweetened with honey) can decrease odor and "pull toxins out."
- Placing 1 teaspoon of baking soda directly in the pouch can neutralize acid smell.

- Emotional perspective: Many participants agree that gratitude and self-acceptance are ongoing practices. It's normal to have insecurities, but focusing on being alive and well helps keep the ostomy in perspective.
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