This topic is about the challenges and risks associated with using doctor-prescribed narcotics, especially for those living with an ostomy. It highlights personal experiences and offers advice for managing pain and medication use effectively.
- One person shared their journey of becoming dependent on Vicodin, which was prescribed to manage pain and slow food transit with a J-pouch. They took 6-8 tablets daily, unaware of the drug's addictive nature. Stopping the medication abruptly was very difficult. After transitioning to an ileostomy, they regained health and no longer needed prescription pain relief. They now enjoy activities like swimming, biking, and plan to kayak.
- They are currently trying to help a relative who is overusing multiple mind-altering prescriptions. They emphasize that people often don't stop using narcotics until they face a crisis and credit their own recovery to a supportive family member.
- During withdrawal, they replaced Vicodin with heavy wine consumption, which turned out to be worse. Now, they avoid prescription drugs and alcohol but occasionally use cannabis for pain and relaxation.
- Their relative's medication regimen includes morphine, lorazepam, and others, leading to repeated falls and fractures, which result in more prescriptions.
- They feel that many doctors refill narcotics without considering dependency risks or exploring alternatives. They believe every patient needs an informed supporter to monitor treatment.
- Personal challenges include adapting to a second ileostomy, potential future surgery, and fears about dating due to ostomy-related disclosure.
Advice and insights from this experience include:
1. Shared experiences are valuable. Those who have dealt with narcotic dependence or life with an ostomy can offer guidance and support. Look for opportunities to help others.
2. Before changing or stopping an opiate, consider the pros and cons. Weigh the benefits to quality of life against potential health, psychological, and social costs. Decisions are rarely straightforward.
3. Listen to other patients' stories to find strategies that balance symptom control with minimal drug harm.
4. Self-monitoring can help limit abuse potential. Follow dosing instructions, inform doctors of any changes in tolerance, and aim for the lowest effective dose.
5. Regular lab work, such as kidney and liver panels, can detect complications from drugs like Percocet. One person reported a bowel perforation after long-term Percocet use and is now being medically weaned while seeking alternative pain control.
6. Be aware that withdrawal may lead to substitution behaviors, like turning to alcohol. Plan for support and non-narcotic coping tools in advance.
7. Having a supportive person who attends appointments, asks questions, and advocates for you can reduce the risk of unchecked prescribing and provide emotional support during tapering.
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