Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,452 members
Mar 14, 2016

Happy Birthday

This topic is about someone who has been living with an ileostomy for two years and is now considering a second surgery to remove the remaining rectal stump. This decision comes after experiencing some bleeding, which tests have shown is due to inflammation, likely from diversion colitis. The person is seeking advice and personal experiences from others who have undergone this type of surgery, particularly regarding recovery and any after-effects.

Here are some insights and advice shared by others:

1. **Experiences with Total Proctectomy or Completion Surgery**
- Many people who have had the rectal stump removed report initial pain or discomfort, especially when sitting, but find long-term relief from symptoms like bleeding and inflammation.
- One person who had the surgery over 50 years ago mentioned it was a great decision, with initial healing challenges but no long-term issues.

2. **Possible Complications to Discuss with Surgeons**
- There is a possibility of affecting nerves to the bladder, which might be more common in men. One person mentioned losing bladder sensation and now manages by voiding on a schedule but otherwise functions well.
- Healing in the pelvic area can take longer, so it's important to be prepared for extended wound care.

3. **Psychological Considerations**
- Deciding on further surgery can be mentally tough, especially if the condition isn't life-threatening. Gathering detailed information can help in making an informed decision.

4. **Information Resources**
- There are threads on forum.iasupport.org with detailed user stories about total removal.
- Archived posts from 2011 titled “Surgery to remove rectum post ileostomy” offer various perspectives.

5. **Encouragement and Outlook**
- Many people lead active lives after the second-stage surgery, engaging in activities like kayaking, scuba diving, and working full-time. Celebrating milestones like “stoma-versaries” is common.
- Staying positive and well-informed is seen as crucial for a successful outcome.

The person is planning to have the operation at Freeman Hospital later this year and is preparing a list of questions for the surgical team. They enjoy boating near the River Tyne and are a fan of Portsmouth football, which adds a personal touch to their journey.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,452 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

New to ostomy
Travel Tips for Ostomates Visiting Switzerland
Hello fellow Ostomates
Heyy I’m new here!
UOAA Conference Photos, Part 2
You Might be an Ostomate if...
Living life with complete abandon
Alcohol and Leakage Concerns for Ileostomates
Best Deodorant and Lubricant Tips for Ileostomy Users
New ileostomy

New Topics

B. Withers - Be Kind 72
When to Consider Stoma Hernia Repair?
Just a boy looking for a girl
Pictures
CORTISOL
Black Polyp on Stoma: Seeking Advice and Experiences
BUMPER STICKERS
Would love to meet some going through the same thing
DODGER BLUE
B. Withers - Be Kind 87
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑