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40,882 members
Feb 11, 2022

Caveat emptor - ostomy cure?

Topic Explanation:
The initial post discusses the concept of "buyer beware" in the context of clinical trials involving surgery, specifically focusing on the TIES experimental clinical trials for an artificial implant to assist people with iliostomies. The author expresses skepticism and mistrust towards organizations promoting ostomy cures and raises concerns about misleading marketing, lack of transparency, and profit-driven motives.

Advice and Insights:
- Be cautious and skeptical of ostomy cure products and clinical trials, as they may not always deliver the promised results.
- Scrutinize the marketing claims and look for transparency in the information provided by the organizations promoting ostomy cures.
- Seek out peer-group reviews and user experiences to gain a balanced view of the product or clinical trial.
- Consider joining a stoma site or support group where ostomates openly discuss their experiences and potential issues with ostomy cures.
- When undergoing medical procedures or considering clinical trials, be inquisitive, bring a trusted companion to meetings, and ensure a thorough understanding of the technical details and potential downsides.
- Express the need for non-profit institutions in the medical profession to prioritize patient well-being over profits.

Insights from Reply 2:
- The author shares personal experiences with the J-Pouch procedure, highlighting the potential complications and challenges associated with experimental surgeries for ostomy management.
- Emphasizes the importance of being informed about the potential downsides and complications of medical procedures, especially experimental ones.
- Expresses disappointment in the profit-driven nature of the medical industry and advocates for non-profit institutions in medicine.

Insights from Reply 3:
- Expresses agreement with the sentiment that the medical profession should be non-profit and acknowledges the prevalence of profiteering in the industry.
- Suggests that changes in the medical industry may only occur if laws are enacted to outlaw profiteering.

Insights from the Initial Post:
- The author expresses deep mistrust of organizations that promote ostomy cures and raises questions about their marketing tactics and motives.
- Highlights the need for transparency, balanced information, and accountability in the promotion of ostomy cure products and clinical trials.
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