This topic is about sharing experiences and practical advice from someone who is seven weeks into their journey after ostomy surgery. Here are some helpful insights and tips they have gathered:
- Educate yourself by reading and researching. The more you know, the less anxious you’ll feel.
- Don’t hesitate to request free samples from ostomy supply companies until you find the appliance that suits you best.
- Niltac adhesive remover spray has been found to be very effective.
- Follow the "COOK, CUT, CHEW" guideline for preparing food, and make sure to drink plenty of water.
- If you feel pressure around your new stoma, it might just be thick output, so try not to worry.
- Make walking a daily habit and include gentle stretching and light core-strengthening exercises as you feel comfortable.
- Changing your appliance can take anywhere from 5 minutes to 2 hours, so take the time you need.
- It’s safe to touch your stoma; you won’t hurt it.
- Keep in touch with your stoma or ET nurse, as they are an invaluable resource.
Additional advice and insights from others include:
1. Many people agree with these tips and encourage continuing the same routine.
2. Some prefer different adhesive removers, like Coloplast Brava, and suggest trying samples to compare.
3. Another person at the same stage post-op is successfully engaging in various exercises and is looking for specific stretching ideas.
4. Stoma care is unique to each person, and the main goal is to keep the skin around the stoma healthy.
5. Be prepared for a transition when regular visits from your ET nurse end, as you might feel a gap in support.
6. If you experience persistent leaks, like one member with a 5-month-old loop ileostomy, consider posting a detailed question in a dedicated forum to get targeted help.
7. There’s curiosity about who manufactures Niltac spray, with some familiarity with Esenta Adhesive Remover Spray by ConvaTec.
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