This topic is about experiencing nerve pain near an ileostomy, which is a type of stoma. The person who started the discussion is feeling persistent pain under the skin beside their ileostomy, even though the skin looks healthy. Medical professionals have suggested that this might be due to nerve damage. They are curious if others with an ostomy have had similar experiences.

Here are some insights and advice shared by others:

- An ostomy nurse mentioned that the nerve might be "trapped," causing the pain. The discomfort is specifically to the right of the stoma, although the exact nerve involved hasn't been identified yet. The person is considering looking into abdominal cutaneous nerve entrapment as a possible cause.

- It's not uncommon to experience short-term nerve pain around the stoma after surgery. Some people have found relief with prescription medications for nerve pain, and they noted that the symptoms often improve over time.

- Nerve pain related to scar tissue, including pain along a midline incision, can sometimes worsen in cold weather. However, it usually decreases over a few years. The severity of the pain can depend on how deep the scar is and how well it heals, according to doctors.

- It might be helpful to discuss with a healthcare provider the possibility of ACNES (abdominal cutaneous nerve entrapment syndrome) as a potential diagnosis for localized nerve pain near an ostomy.