This topic is about someone adjusting to life with a new ileostomy after their J-pouch, which they had for many years following ulcerative colitis, failed. They are reaching out for support and connection as they navigate this change. Here are some insights and advice shared by others in similar situations:
- You are not alone. Many people in the forum have ileostomies or have experienced failed J-pouches and understand the emotional challenges that come with it.
- It's important to know that J-pouch issues are not uncommon. Statistics show that 15-44% of J-pouches develop problems, and about 10% ultimately fail. Remember, this is not your fault.
- There are many long-term success stories. Some members have lived with an ileostomy for 30 to 50 years and lead full, rewarding lives. Viewing the surgery as life-saving can help with acceptance.
- Being part of a community can be incredibly beneficial. The forum offers global friendships, shared tips, humor, and a safe space to discuss concerns. Many members found the support they needed here when they couldn't find it locally.
- Knowing that famous people also live with ostomies can help normalize the experience and show that it's possible to lead meaningful, public lives despite the challenges.
The person also shared that they are from Halifax, Nova Scotia, and appreciate connecting with others from the same region, especially given the long winters there. They are open to private chats and grateful for the warm welcomes they've received.
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