This topic is all about managing the extended wear of ostomy appliances, focusing on the biology of the skin, the variables in adhesives, and exploring different brand options. Here are some helpful insights and advice for navigating this:
- The outermost layer of your skin, known as the stratum corneum, is constantly being renewed. This process happens even faster on the skin around your stoma due to moisture, occlusion, and exposure to output and friction.
- Several factors can affect how long your ostomy wafer stays secure, including your skin condition, age, perspiration, pH levels, and daily hormonal or oil changes. This means that wear time can vary greatly from person to person.
- Showering without a pouch allows your skin to absorb water. Even after drying off, some moisture can remain and seep into the wafer, loosening pectin-based adhesives.
- No ostomy appliance can last indefinitely. Be prepared to change products or brands as your body or environment changes.
- Your individual pH levels can fluctuate, which might make one brand adhere better than another on different days.
- It's important to be open to experimenting with different products, including those from smaller or overseas manufacturers, to find what works best for you.
Additional insights include:
- If you have allergies to most commercial wafers, consider building a custom baseplate so that manufacturer wafers don't touch your skin. Some materials you might use include:
- Probond prosthetic glue, which is safe for skin.
- Sookwang double-sided tape or double-sided carpet tape for easier cleaning.
- A simple rectangular backing held by one or two belts.
- An adapted Coloplast 2-piece irrigation faceplate, with the central hole reduced and secured with tape and prosthetic glue.
- For those sensitive to many tapes, pastes, silicone, and powders, the above system might still work because only the chosen tape or glue contacts the skin. You can substitute each component until you find a non-reactive combination.
- An extended-wear alternative is the Marlen system, which includes a thick vinyl pouch and a thick rubber mounting ring. Benefits include water resistance, a 7-day wear time, and a narrower tail that's easier to empty.
- New Hope offers fully custom-made ostomy supplies, and their in-house WOC nurses can assist with building a clinical or insurance justification.
- International resources can be helpful, such as Japanese pharmacies and suppliers, which are notably supportive of ostomates. The NSW (Australia) Ostomy Journal from Summer 2018 provides traveler experiences and lists helpful contacts.
General tips:
- Understand that skin desensitization can occur over time, and continuous wear often improves tolerance.
- When managing your ostomy, pay attention to the entire change routine. Small adjustments, like drying time, wafer warming, and belt tension, can significantly improve the seal's life.
- Keep an updated list of every product you've tried, noting the brand, adhesive type, and results. This can help you identify patterns related to pH, sweat, or diet changes.
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