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Apr 19, 2023

Prolapse & Retraction

This topic is about experiencing changes in a stoma's size after having surgery to repair a parastomal hernia. Initially, everything was stable for nine months, but then the stoma started to change size daily. During the day, it prolapses, or extends, from about 25 mm to 50 mm, and at night, it retracts almost flat. The person is curious if others have experienced this kind of daily cycle.

Here are some helpful insights and advice from others who have been through similar situations:

1. It's quite common for a stoma to change size. Many people notice that their stoma extends by 1 to 3 inches when they are upright, active, or cleaning it. It usually retracts to a smaller size when they are lying down or relaxed.

2. Surgeons often suggest that no action is needed if:
- The stoma retracts on its own.
- The color and blood flow of the stoma remain normal.
- There are no issues with output or passing gas.

3. Be aware of warning signs that need urgent medical attention, such as a sudden severe prolapse with pain, stopped output, or a change in color. One person had to visit the emergency room when a larger prolapse caused an obstruction.

4. Large or persistent prolapses, ranging from 4 to 9 inches, are not uncommon. Some people live with them for years. Surgical revision is an option but comes with the risk of recurrence. Therefore, some, especially older individuals or those with permanent ostomies, choose to monitor the situation rather than undergo another surgery.

5. If you notice watery or diarrhea-like output and a "fatter" stoma during prolapse, it's important to stay hydrated. You might also want to talk to a stoma nurse about adjusting your pouching system if you experience leaks.
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