Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,480 members
May 04, 2023

Rectal Stump - To Remove or Not to Remove?

This topic revolves around the decision-making process for someone who has lived with an ileostomy for ten years and is considering what to do with their rectal stump. The person is exploring three main options: keeping the rectal stump, creating a J-pouch, or removing the rectum entirely. Here are some insights and advice shared by others who have faced similar decisions:

1. Living with a Rectal Stump:
- Many people have kept their rectal stump for decades without significant issues, though some mucus drainage is common. Regular endoscopic checks are recommended if possible.
- Some manage mild inflammation with specific treatments, humorously referred to as "butt vitamins," though the exact product isn't specified.

2. Dilatation or Ileorectal Anastomosis:
- One person with an ileorectal anastomosis is open to questions. This option reuses the rectum and avoids an external pouch.

3. Rectal Stump Removal While Preserving the Anus:
- A few individuals have had their rectum mostly removed but kept the anal canal. They found recovery manageable and life easier without mucus build-up pain. If a surgeon dismisses this option, seeking a second opinion might be beneficial.

4. Complete Proctectomy and Permanent Ileostomy:
- Some have undergone laparoscopic total removal, reporting manageable pain and a full recovery. Long-term satisfaction is high, with no major issues except occasional phantom sensations.
- Concerns about nerve or sexual function issues are generally unfounded, as most report a happy and normal life post-surgery.

5. J-Pouch Experiences:
- Experiences with J-pouches are mixed, with some initial success followed by complications like obstructions and sepsis, leading to a permanent stoma.
- Those with Crohn’s or a combination of UC and Crohn’s are at higher risk for J-pouch failure. Listening to one's instincts is advised.

6. Alternate Continent Options:
- The BCIR (Barnett Continent Intestinal Reservoir) was tried by one person but eventually abandoned due to complications.

7. Practical Tips and Products:
- Disposable underwear, like "Depends," was recommended in the past for J-pouch users.
- Modern convex appliances for stomas are praised for their reliability and suitability for an active lifestyle.

Overall, if the rectal stump is symptom-free and can be monitored, conservative management is a reasonable choice. However, chronic pain, mucus retention, or an unmanageable stricture may necessitate removal. J-pouch outcomes can vary, especially with Crohn’s involvement. Recovery from laparoscopic proctectomy is typically quick, and many report excellent long-term quality of life with a permanent ileostomy.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,480 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

Graves Disease
Not Exactly an Introduction
Barrier Wipes or Spray: Which Do You Prefer?
An old guy looking for new things
Hey everyone
Ostomy Day
Urinating Problem After Colostomy Surgery
Are Snacks Essential After an Ileostomy?
Best Ostomy Support Belts for New Users
Drinking Alcohol with an Ileostomy: Tips for the Holidays

New Topics

Is it normal to not pass mucus post-ileostomy?
LACK OF A SHADOW
Caring
Talking to My Ostomy: Am I the Only One?
Want to know why you're sick?
Flying with a Spinal Cord Injury and Ileostomy: Tips Needed
Where to Buy Ostomy Supplies Online?
THE PAVLOV EFFECT
October in the Northeast over the years…
Hello 👋
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑