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May 11, 2023

Facing Surgery and Recovery - Seeking Advice and Support

This topic is about someone preparing for a permanent colostomy after treatment for anal cancer. They are seeking practical advice and emotional support as they face surgery and the changes it will bring to their life. Here are some helpful insights and advice shared by others who have been through similar experiences:

1. Life after surgery can be fulfilling. Many people with long-term ostomies lead active lives. It might be challenging at first, but with time, you'll gain confidence and establish a routine.

2. Mind-set and emotional tools:
- Focus on the present and try not to worry about every possible future scenario.
- Keep a sense of humor. Some people even name their stomas and find laughter in unexpected moments.
- Create a "keepsake jar" with funny memories or small victories to boost your spirits during recovery.
- Set small, rewarding goals to celebrate progress, like enjoying a popsicle or spending time with a pet.

3. Surgery and recovery tips:
- The surgery itself is straightforward since you'll be asleep, but the real work begins with post-op healing and learning to manage the appliance.
- Check if the hospital has WOC (Wound, Ostomy, Continence) nurses, as they can be incredibly helpful right after surgery.
- If you have the energy, enjoy your favorite activities before surgery, as they might be limited during early recovery.

4. Learning the ostomy routine:
- Expect some trial and error with pouches and accessories until you find what works best for you. The community is there to help with product-specific questions.
- Some people eventually use colostomy irrigation, which might allow them to wear only a cap instead of a bag.

5. Odour control is manageable with pouch deodorant drops, high-quality appliances, and strong bathroom exhaust fans. Odour should not be a major concern.

6. Day-to-day freedom can improve, as a colostomy often eliminates the constant urgency and need to plan bathroom visits, allowing for greater social freedom.

7. Relationships and social life:
- Partners who truly care will accept you as you are; a stoma does not define you.
- As you become more confident in your care routine, you'll find that most days you won't even think about it.

8. Community support is available through forums and online videos that offer step-by-step guidance. Don't hesitate to ask any questions, no matter how small.
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