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May 27, 2023

Update on My Two-Step Reversal Surgery and Challenges

This topic is about someone who is having a tough time managing a retracted loop ileostomy after a colostomy reversal. The new ileostomy is almost level with the skin, sits next to a stapled wound that creates a deep indentation, and produces very watery output. These issues make it hard to get a good seal, causing the wafer to lift and the skin to burn. The person is feeling emotionally drained but is hopeful since the ileostomy is expected to be reversed in about seven weeks.

Here are some pieces of advice and helpful insights shared by others:

1. General encouragement: Many people remind the person that having the chance for a reversal is something to be grateful for, and they encourage patience while solutions are being found.

2. Appliance ideas for flush or retracted stomas:
- Contact Nu-Hope in the USA for customized convex wafers, special belts, and a non-adhesive silicone O-ring system held in place by their belt. These are said to simplify changes and handle uneven skin well.
- Try Hollister Adapt Stoma Paste to fill in localized depressions next to the stoma. This has been effective for someone else when an incision created a small dip.
- Consider building up the hollow area with cut pieces of Hollihesive and/or moldable barrier rings, then overlaying the wafer. This method is described as an "art project" but has helped reduce leaks.
- Sensura (Coloplast) Convex pouches can be more effective than flat systems on retracted or flush stomas, even shortly after surgery, if other options don't work.
- Look for the "plastic lip" accessory previously discussed on the forum that snaps around the stoma to channel effluent away from the wafer edge. Members are trying to find the exact product reference.

3. Practical tips:
- Ask the stoma team if it is safe to trim external stitches so they do not interfere with the wafer.
- Keep a close eye on hydration, as persistent very watery ileostomy output plus vomiting can lead to dehydration.
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