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41,405 members
Jul 08, 2023

Stoma Anniversary

This topic is all about celebrating a special milestone known as a "Stomaversary," which marks the anniversary of when someone received their ostomy. In this case, the originator is celebrating nine years since their surgery. Here are some insights and advice shared by others in the community:

- Long-term skin health is a common concern. One person, who has been living with an ostomy for 38 years and is now on their second stoma, is curious about how the skin around the stoma holds up over time. They are seeking advice from those who have been through it.

- There are inspiring stories of longevity. Some members have shared that they have been living well with their ostomies for 36 and 38 years, proving that it's possible to thrive for decades.

- Emotional responses to having an ostomy can vary greatly. Many people celebrate each anniversary as a positive milestone, embracing their journey. However, one member, who is three years post-surgery, still finds it challenging to accept. They describe their surgery and recovery as extremely difficult and, despite being eligible for a reversal, have chosen not to pursue it due to their age (almost 80), current good health, and a lack of trust in further medical procedures.

- It's interesting to note that stoma positions can change. After undergoing resection surgery, one experienced member had their stoma moved from the right to the left side, showing that adjustments can happen with subsequent surgeries.
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