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40,819 members
Jul 09, 2023

If Your Stoma Isn't Perfect, Read On

Topic Explanation
The forum discussion centers around the importance of stoma revision surgery for ostomates experiencing issues with their stoma. The original poster, Bob, shares his personal experience of living with a problematic stoma for nearly a decade before opting for revision surgery. He describes the significant improvements in his quality of life post-surgery and advises others with suboptimal stomas to consider revision surgery to alleviate ongoing issues such as leaks, skin irritation, and frequent barrier changes.

Advice and Insights

1. Stoma Revision Benefits:
- Revision surgery can significantly improve quality of life by reducing leaks, skin irritation, and the need for frequent barrier changes.
- A properly formed stoma can lead to longer wear times for barriers and fewer product changes.
- Post-revision, output can be more predictable and manageable, reducing the need for emergency changes and constant vigilance.

2. Personal Experiences with Stoma Issues:
- Scar tissue can form around the stoma over time, potentially shrinking its diameter and causing blockages or other issues.
- Some individuals may need multiple revisions if scar tissue continues to form.
- Even if symptoms are manageable, ongoing issues may eventually necessitate another revision.

3. Hernia Concerns:
- Hernias are a common issue among ostomates, and opinions on whether to repair them vary.
- Some individuals live with hernias without significant issues, while others find them painful and opt for surgery.
- Hernia repair success rates can be low, and some surgeons advise against surgery unless the hernia causes significant pain or discomfort.
- Post-surgical advice, such as avoiding heavy lifting, is crucial to prevent recurrence.

4. Surgical Considerations:
- Some individuals are hesitant to undergo hernia repair due to the potential need to relocate the stoma, which involves a significant recovery period and adjustment to new supplies.
- The decision to undergo surgery often depends on the severity of symptoms and the potential impact on quality of life.

5. Product and Barrier Adjustments:
- Switching to different types of barriers or products can help manage issues like leaks and skin irritation.
- Soft barriers and specific brands may offer better fit and comfort for some individuals.
- Properly fitting barriers can prevent leaks and improve overall stoma management.

6. General Advice:
- Consulting with multiple surgeons or stoma nurses can provide different perspectives and potential solutions.
See full discusison
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