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41,456 members
Jul 09, 2023

If Your Stoma Isn't Perfect, Read On

This topic is about understanding when and why you might consider having a stoma revision, and what issues it can help resolve. Here are some insights and advice shared by someone who has lived with an ostomy for several years:

- The person had a poorly constructed end-ileostomy that was flush or retracted, angled sideways, and surrounded by distorted skin. This led to chronic leaks, skin breakdown, fistulas, and blockages. After enduring these issues for years, a full obstruction led to a revision surgery, which significantly improved their quality of life.

- After the revision, they experienced:
1. Longer wear time for their appliance, up to 4-5 days.
2. No more leaks or skin issues, as the effluent dropped directly into the pouch.
3. Less need for emergency kits or trying out new products.

- The key message is that if your stoma is not functioning well or is irregular, considering surgical revision might be more beneficial than constantly trying new products.

Additional insights include:

- Scar tissue can develop and constrict the stoma over time, potentially requiring revision. It's important to monitor the stoma's size and any symptoms.

- Hernia management is often delayed unless the hernia is painful or obstructive. Recurrence is common, often due to lifting or straining too soon after repair. Some surgeons suggest relocating the stoma during hernia repair, but patients may be hesitant to adjust to a new stoma location.

- Support garments like hernia belts can provide comfort and may help prevent leaks, though evidence on preventing hernia enlargement is unclear.

- For those with prolapse or hernia, switching to soft or flat barriers can relieve discomfort. Some users recommend specific products for their comfort and fit.

- Unaddressed hernias can lead to complications, such as bowel loops descending into the scrotum in severe cases. Early consultation with a surgeon is advised to discuss risks.

- Emotional support and motivation are crucial. Many find that having a well-formed stoma makes living with an ostomy much easier, and hearing about others' experiences can help alleviate anxiety about revisions or repairs.
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