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Aug 07, 2023

Ileostomy and Joint Pain

This topic is about experiencing joint pain after ileostomy surgery, particularly for those who have undergone the procedure due to ulcerative colitis. A person from New Zealand shared their experience of developing significant pain in their knees, wrists, and thumb joints about four weeks after their surgery. Their doctor suggested that this might be due to lingering inflammation in the rectal/anal stump. They reached out to see if others have had similar experiences and how they manage the pain. Here are some insights and advice shared by others:

- Ongoing inflammation in the rectal/anal stump can cause systemic symptoms like joint pain and skin issues. It's important to consult your doctor to address any remaining disease activity.

- Anti-inflammatory medication targeting the stump can be helpful. Some have found relief using 2 g Mesalazine (5-ASA) suppositories twice daily to control flare-ups and associated joint pain.

- For joint pain relief, analgesics or NSAIDs can be effective. Voltaren (diclofenac) tablets are noted for providing quick relief from arthritic pain during flares. Over-the-counter options like Advil (ibuprofen) or taking baths/soaks can also help with general musculoskeletal pain.

- If you are dependent on Prednisone, be aware that tapering or reducing the steroid can sometimes worsen arthritis. Some people choose to stay on a maintenance dose until the stump is removed or another solution is found.

- Vitamins and supplements that may help with joint pain, as well as skin and eye dryness, include Vitamin C, Vitamin E, B-complex, Vitamin D, and Vitamin K. Cod liver oil (omega-3) and magnesium taken at night can also be beneficial, though magnesium might increase ileostomy output.

- Cannabidiol (CBD) has been used by some, but one person reported significant gas and build-up that affected their pouch adhesion, so caution is advised.

- General measures for recovery include allowing your body time to heal after major surgery, which can take up to two years for some. Staying well-hydrated, eating healthily, and supplementing nutrients that are hard to get from food are also recommended.

- It's a good idea to review your medications to see if any prescribed drugs, over-the-counter products, vitamins, or statins might be causing or worsening joint pain. Discuss possible alternatives with your doctor.
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