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Sep 28, 2023

Living with Both Colostomy and Urostomy - Seeking Advice and Experiences

Living with both a colostomy and a urostomy involves some adjustments, but many people manage it successfully. If you're considering adding a urostomy and already have a colostomy, here are some insights and tips that might help you:

1. Urostomy surgery is often compared to colostomy or ileostomy surgery in terms of pain, recovery, and potential complications. It's helpful to hear from others who have experienced both to understand what to expect.

2. Having two appliance pouches on your abdomen might seem daunting at first, but it becomes part of your routine. You learn to manage one pouch at a time, and it's important to always change or empty the urine pouch first to avoid cross-contamination.

3. The daily routine, including emptying, changing, and showering, can be managed with some planning:
- Showering: It's recommended to remove both pouches together every third day. On other days, you can change them separately.
- Night care: Connect the urostomy pouch to a night-time drainage bag. You might still need to get up once or twice to empty the fecal pouch, especially if you have an ileostomy.

4. Sleeping positions can be adjusted for comfort. Side-sleeping is possible, and with continuous urine drainage, you can roll further onto the side opposite the tubing.

5. Be aware of the risk of leakage, particularly with the fecal pouch. "Blow-outs" can happen during sleep if you roll over too far or don't wake up in time to empty it. This is more common with ileostomy output than colostomy output.

6. Overall, adding a urostomy is often seen as "not a big extra inconvenience." Since a colostomy is generally easier to manage than an ileostomy, the adjustment might be smoother for someone who already has a colostomy.
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