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Sep 29, 2023

Dealing with Leaks from an Inverted Stoma

This topic is about managing constant leaks from an inverted or retracted stoma. The person sharing their experience is looking for practical ways to control the leakage and improve the wear-time of the pouch for their husband, who is dealing with this issue. Here are some helpful insights and advice shared by others:

1. Consider stoma revision surgery:
- Many people have found that constant leakage from an inverted stoma often requires surgical correction.
- Surgery might involve pulling the bowel out further and re-suturing it, or relocating the stoma to a more stable area on the abdomen.
- It's important to consult with the original surgeon, a colorectal surgeon, or a gastroenterologist who has experience with ostomy revisions.

2. Engage specialized ostomy support:
- Request help from an ET/NSWOC (WOC) nurse for hands-on fitting assistance. You can find a directory for Canada-wide support at the Ostomy Canada website.
- Large hospitals, such as Western or St. Joseph’s, may have ostomy surgeons available. Arriving by ambulance can sometimes reduce emergency wait times.

3. Appliance and fitting tips (temporary solutions until revision):
- Try using a moldable seal with the deep convex flange to better adapt to the retracted stoma.
- Experiment with applying the wafer while the patient is lying flat or standing to see which position reduces retraction under the wafer.
- Pay attention to which positions or times of day trigger leaks. Some people find fewer issues when applying the appliance after the output has calmed.
- Keep seeking professional fitting help, as frequent nightly changes are not a sustainable solution.

4. Output-thickening and slowdown strategies to reduce mess during changes:
- Incorporate foods like potatoes, rice, pasta, bananas, and marshmallows into the diet.
- Use anti-diarrheal medication temporarily, as approved by the medical team.
- Some people eat thickening foods before bedtime to reduce nighttime liquidity.

5. Community encouragement:
- Caregivers are encouraged to take care of their own health and to share updates on any products, treatments, or surgical options that help resolve the issue. This information can be valuable to others facing similar challenges with inverted-stoma leakage.
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