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Oct 07, 2023

Ostomy Awareness Day

Ostomy Awareness Day is a special occasion dedicated to raising awareness and understanding about living with an ostomy. It's a time for people with ostomies to share their experiences, celebrate personal milestones, and connect with others in the community. Here are some ideas and insights on how to celebrate and make the most of this day:

- One person is celebrating by writing blog posts about ostomy experiences and sharing helpful resources with the public. This is a great way to spread awareness and provide support to others.

- A stoma, affectionately named "Marvin," recently turned six months old. The ileostomy was initially created on January 1, 2022, and was relocated six months ago, which finally allowed for regular pouch wear.

- Finding a nearby support group can be challenging, as the closest meeting is an hour away and held in the evening. This can make it difficult to attend regularly.

- Insurance can sometimes limit the number of supplies covered, leading to out-of-pocket expenses for extras like odor-control drops.

- Participating in events like the UOAA 5K can be a fun way to celebrate, though recovering from an injury, like an ankle sprain, might make completing the full distance a challenge.

- Unexpected leaks can happen, as experienced with a tiny hole in the pouch, which was the second defective bag encountered.

- Learning about Ostomy Awareness Day through updates from organizations like the UOAA can keep you informed and engaged.

Here are some additional suggestions and insights:

1. Attend local awareness events. For example, a stoma-nurse team organized a coffee morning with talks from ostomy product companies and updates from the NHS, providing valuable information and a sense of community.

2. In the UK, the Colostomy Association and most pouch manufacturers recognize all of October as Ostomy Awareness Month, offering more opportunities for events and advocacy.

3. Participate in UOAA 5K runs or walks, such as the one in Arkansas, to actively celebrate and raise awareness.

4. If traveling is difficult due to health reasons, consider celebrating at home by acknowledging personal survival milestones, which can be just as meaningful.

5. Embrace the idea that "every day is ostomy awareness day." Being open and advocating in everyday life helps normalize living with an ostomy.
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