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41,439 members
Nov 19, 2023

Adjusting to Life with a Colostomy - Seeking Support and Sharing Experiences

Adjusting to life with a new colostomy can be a challenging journey, especially in the early stages. This topic is about someone who is four weeks post-surgery after dealing with diverticulitis and a severe flare-up. While they understand the necessity of the operation, they are experiencing a mix of emotions such as depression, anxiety, and self-consciousness, along with a fear of the unknown. A wound-vac pump is also making mobility difficult and drawing attention in public. As they prepare to return to work from home, they are concerned about their stoma being most active at the start of the workday. They are reaching out for support, shared experiences, and practical tips from others who have ostomies.

Here are some helpful insights and advice:

1. Education and reliable resources:
- Check out the United Ostomy Association of America (UOAA) website and Ostomy101.com for valuable information on diet, blockages, skin care, clothing, products, travel, and lifestyle.
- Consider joining a local ostomy support group for additional support.

2. Mental and emotional health:
- It's normal to experience grief, anxiety, and unexpected tears in the early stages; these feelings will ease over time.
- Use forums to ask questions, vent, and share your experiences—knowing others understand can help relieve worry.
- Focus on what you can control and try to let go of the rest; remember, life is too short for constant worry.

3. Work and daily routine:
- Be patient with yourself and pace your activities; starting work from home can be beneficial.
- Keep spare supplies handy, such as in your car or work area, for unexpected leaks or appliance changes.

4. Appliance management and leak prevention:
- Colostomy output is usually thicker and less acidic, so wafer holes don't need to fit as tightly as with ileostomies, reducing the risk of skin irritation.
- Consider carrying a waterproof ostomy-bag cover to manage leaks or bursts.

5. Hernia prevention and abdominal support:
- Wearing a support belt during the healing phase can be helpful; options include Nu-Hope belts and Stealth Belts.
- While belts can't guarantee prevention, many wish they had used one earlier to avoid peristomal hernia.

6. Community encouragement:
- Remember, you are not alone. The forum offers collective wisdom, humor, and experiences from newcomers to 30-year veterans.
See full discusison
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