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Dec 29, 2023

Post-Op Pain 5.5 Months Later - Seeking Advice and Shared Experiences

This topic is about someone who is experiencing persistent pain in the pelvic and stoma area, 5½ months after undergoing emergency surgery for diverticulitis, which resulted in a colostomy. They are reaching out to see if others have had similar experiences and to gather advice on managing the pain. Here are some insights and suggestions shared by others:

1. Intermittent pelvic soreness and needle-prick sensations near the stoma can occur, even without leaks.
2. Pain in the mesentery or right-side oblique area is common, especially when the output is thick.
3. Gas can be particularly painful, but relief often comes once it passes. Using a heating pad can help alleviate discomfort.
4. A possible parastomal hernia might cause occasional pain at the bulge.
5. Pain tends to worsen when changing positions, such as moving from sitting to standing or lying down to sitting.
6. Despite these issues, the general condition is stable, with good appetite, no nausea, and proper stoma function.

Due to insurance limitations, the earliest available in-network appointment is at the end of January, and the primary care physician advised visiting the ER only if new severe symptoms appear. The person is curious if others have experienced similar post-op pain and what types of pain they have encountered.

Additional insights include:

- Gas pain is a common issue, and bubbles can cause long-term discomfort.
- Musculoskeletal issues, like hip cramping, can persist for many months after surgery.
- Recurrent abdominal or stoma-area pain might be due to blockages, gas, hernias, lazy gut, or prolapse. It's important to have new or unfamiliar pain evaluated by a medical professional.
- Parastomal hernias can worsen gas pain, so keeping stool loose can help. One person mentioned taking MiraLAX twice daily for this purpose.
- For insurance issues, consider requesting a patient advocate within the insurance company and persistently push for an earlier, in-network surgical review. Avoid ER visits unless absolutely necessary due to the risk of illness exposure and limited specialist follow-up.
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