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Jan 05, 2024

Ostomy Bags Causing Discomfort and Pain - Need Advice

This topic is about someone who recently had an emergency ileostomy and is experiencing discomfort with their ostomy pouch. They describe a "vacuum-like" pulling sensation from the adhesive wafer, which causes pain and makes it difficult to stand upright. Despite trying different pouch systems and consulting with nurses, the issue persists. They are seeking advice from others who might have experienced something similar. Here are some helpful insights and advice:

1. Output and Weight Management
- Empty the pouch more frequently to reduce weight.
- Consider taking Imodium (loperamide) 2 mg twice daily to decrease the volume of ileostomy output.

2. Skin Preparation and Removal
- Use a gentle adhesive-remover spray before removing the wafer, then wash and pat the skin dry. Blow-dry the skin for extra dryness.
- Apply Salts Barrier Wipes or Dansac Skin Protector Wipes to minimize skin irritation.

3. Alternate Appliances and Wafers
- Try Salts Confidence B drainable pouches with a flexible "sun-burst" wafer.
- Consider Dansac NovaLife one-piece drainables with oval wafers and TRE barrier technology.
- Request samples of Coloplast's older wafers with zinc or the new Concave baseplate.
- Order free samples from brands like Pelican ModaVi directly, rather than relying solely on nurse stock.

4. Application Technique
- Apply the wafer while standing fully upright to ensure the skin is stretched to its maximum.
- Warm the wafer between your hands or against your body before applying to improve flexibility and adhesion.
- Shave or closely trim any abdominal hair to prevent extra tugging.

5. Support Options
- Use an ostomy belt, support wrap, or Stealth Belt to reduce the pulling sensation, even if it feels inward rather than downward.

6. Possible Surgical or Tissue Causes
- Tight sutures, early scar tissue, or small fluid pockets can create a vacuum sensation. Gentle stretching and time may help resolve this.
- If pain continues, consult your surgical team for imaging to rule out fluid collection, adhesion, or an early parastomal hernia.

7. Exercises and Comfort Measures
- Start gentle core-strength exercises or "chair plank" exercises and slow stretching under warm shower water to loosen scar tissue.
- Massage around the stoma to relieve back-pressure from gas or thick output.

8. General Tips
- Keep pouches lightly filled and avoid letting gas or output accumulate.
- Continue experimenting with different products; manufacturers often provide samples quickly.
- Many people experience similar pulling sensations early after surgery, which often improves with time and finding the right wafer.
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