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Jan 11, 2024

Ileostomy Reversal Anxiety - Seeking Positive Experiences

This topic is about someone who is feeling anxious about the possibility of reversing their ileostomy. They had an emergency ileostomy due to perforated diverticulitis and are now waiting for a reversal date. After experiencing some tough post-operative weeks with blockages and other issues, they are now worried about potential problems after the reversal. They are seeking reassurance from others who have gone through similar experiences.

Here are some helpful insights and advice for anyone in a similar situation:

1. Understand your anatomy before making a decision. The outcomes can vary significantly depending on how much of your colon and rectum remains. An ileorectal anastomosis, where the small bowel is joined to the rectum, will function differently from a J-pouch or a straight ileostomy.

2. If no colon is left, you might experience frequent and urgent bowel movements because the rectum becomes the only reservoir. This can lead to urgency and possible leakage at night. However, these issues can sometimes be managed with dietary changes and medications like loperamide (Imodium).

3. Consider your age, lifestyle, and how well you have adapted to your current situation. Some younger individuals may opt for a reversal, while others, particularly older people who have adjusted well to their ostomy, might choose to keep it.

4. Be cautious about the "horror stories" you read online. Each person's experience is unique, influenced by their anatomy, the surgical technique used, and various other factors.

5. Weigh the quality-of-life trade-offs. Consider the practicality of stoma care and your work environment against the potential for bathroom urgency and continence issues after a reversal.
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