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Feb 29, 2024

Working blind

This topic is about managing stoma care when you have limited or lost vision. It was inspired by someone who experienced temporary vision loss after cataract surgery and found it challenging to manage their stoma care. Here are some helpful insights and advice shared by the community:

1. Emotional and Community Support
- Knowing there is a supportive community can ease anxiety when physical help isn't available.

2. Planning for Vision Decline or Other Disabilities
- Have a plan in place, such as involving family, caregivers, or home-health services, before eyesight or dexterity deteriorates to avoid crisis situations.
- If you need surgery on both eyes, consider doing them one at a time to retain enough sight for daily stoma care.

3. Appliance Choice for Poor Dexterity or Vision
- Closed pouches with adhesive coupling are easier to manage than drainable bags that require rolling and clipping. Snap-style closures may require more hand strength.
- A two-piece system allows the wafer to stay in place while the pouch is changed by feel.

4. Organizing the Change Area
- Arrange everything in a fixed order and open disposal bags ahead of time. Use two small bags for the used pouch and soiled supplies, and a larger trash liner for easier cleanup.

5. Reducing Pain or Tactile Sensitivity
- For those with neuropathy, avoid washcloths and use gauze moistened with water from a spray bottle, as it is less painful to handle.

6. Managing Uneven Skin or Dips Around the Stoma
- An Eakin Cohesive Seal can fill dips but may be sticky and hard to position with weak or painful hands. Have a second ring ready in case the first one stretches too thin.

7. Aiming and Attachment Aids
- A Stoma Genie can help align the wafer slowly and methodically without needing to start over if vision is poor.
- Flange extenders can secure wafer edges that tend to lift, especially at the top and bottom.

8. Output Control During a Lengthy Change
- Eating marshmallows beforehand can slow colostomy output long enough to finish the procedure calmly.

9. General Coping Outlook
- Many members share concerns about aging into blindness or cognitive decline and being unable to manage pouch changes. Discussing these worries helps others feel less isolated.

These insights and tips aim to make stoma care more manageable for those with vision or dexterity challenges.
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