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Apr 13, 2024

Advice Needed for Upcoming Rectum Removal Surgery

The topic is about preparing for and recovering from a rectum removal surgery, known as a proctectomy, scheduled for May 1. Here are some practical tips and advice to help with the preparation, hospital stay, and post-operative recovery:

1. Sitting and Cushioning
- Avoid using thick pads that might press on the perineal incision.
- Opt for a soft, thin pillow or a flat cushion when sitting. Leaning to one side can be helpful during the first couple of weeks.
- Steer clear of donut-ring pillows as they can disrupt the sutured area.

2. Standing and Activity Setup
- Be prepared for long periods of standing, walking, or lying down, as sitting can become uncomfortable.
- Consider using a hospital-style over-bed or height-adjustable table to eat or use a laptop while standing.
- Before surgery, arrange your home so that workstations, remotes, and kitchen items are at elbow height to minimize bending.

3. Lifting and Bending Restrictions
- Avoid heavy lifting or deep bending for several weeks. A long-handled "grabber" tool can be useful for picking up items or reaching shelves.

4. Household and Personal Care Aids
- Use bed liners to protect your bedding from leaks.
- A handheld showerhead is highly recommended for keeping the perineal wound clean and can also be enjoyable for couples.

5. Pain Management
- You might not feel much pain until the epidural wears off, which is usually around 48 hours post-surgery. Ensure you have adequate pain medication in the hospital. Many people find they need only minimal opioids like oxycodone at home, though some discomfort is common.

6. Nutrition and Hydration
- Stay well-hydrated by drinking plenty of fluids to prevent dehydration.
- Consider setting up meal services, such as Meals on Wheels, for the first few weeks when cooking might be challenging.

7. General Recovery Tips
- Listen to your body and rest whenever needed, as fatigue is common.
- Maintain a routine of walking, hydrating, eating, urinating, and passing stool regularly, followed by rest.
- Some people experience no perineal pain, while others may have wound leakage or infections. Keep the area clean and monitor it closely.
- Urinary issues can arise, so discuss strategies with your care team beforehand.

8. Emotional Support
- Many people who have undergone the same surgery say that the worry before surgery is often worse than the recovery itself. Reach out to others for support if needed.
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