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May 20, 2024

Stoma Leakage from a Second Small Opening - Anyone Experienced This?

This topic is about a person who has been living with a stoma for nearly three years and recently noticed something unusual. They have a tiny second opening near their main stoma, which was initially just a spot where excess stool collected. However, after a recent leakage, they observed stoma output coming from this small hole as well as the main stoma. They are seeking advice or similar experiences from others.

Here are some insights and advice shared by others:

1. Possibility of a fistula:
- One person suggests that the description might indicate a fistula and recommends seeing a doctor to confirm.
- Another person points out that true fistulas usually cause continuous output onto the abdomen and clothing. Since the small opening has been there for three years with minimal output, a persistent fistula seems less likely.

2. Normal anatomy of a loop ileostomy:
- Some people explain that loop ileostomies have two openings:
1. The proximal opening, which releases stool into the pouch.
2. The distal opening, which releases mucus from the non-functional bowel downstream.
- The distal opening can be hard to notice initially and might sometimes release clear, watery fluid or collect small amounts of stool residue, which is generally normal.

3. Personal experiences:
- A person with a loop ileostomy shares that they only see clear, water-like liquid from the second small opening, with occasional residue that seems to have gotten stuck there on its way out of the main stoma. They have never experienced stool actively coming out of that hole.

4. General recommendation:
- Many people emphasize that only a healthcare professional can accurately determine the cause. It is advised to arrange a medical evaluation to rule out any complications and to gain reassurance.
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