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Jun 01, 2024

Urostomy Surgery - Tips, Tricks, and Honest Experiences

Facing urostomy surgery at a young age can be daunting, especially when you're 21 and trying to prepare yourself for what lies ahead. It's natural to have concerns about the surgery, the pain, the recovery process, and the gear you'll need. Here’s some straightforward advice and insights from those who have been through it:

- Pain and Hospital Stay
- Hospitals will ensure you are well-medicated, and you'll go home with prescriptions to manage pain.
- Laparoscopic surgery usually results in less surface pain compared to open surgery, which involves a larger incision and possibly a drain tube. Follow your medical team's advice on how long to keep it.
- Expect some bloating, soreness, and difficulty turning in bed for the first 2-3 weeks. Extra pillows can make the ride home and sleeping more comfortable.
- The first month might feel tough, but most people start moving around within weeks and return to normal activities in a few months.

- Involve Yourself in Care
- While in the hospital, observe every pouch emptying and appliance change. Ask the nurses to let you participate.
- Inquire about the brands and options available for each product used.

- Sampling and Finding the Right System
- Reach out to ostomy-supply manufacturers online for free samples and talk to their stoma-care nurses.
- Explore different product combinations until you find what works best for you.
- Consider popular add-ons like moldable ring seals for a leak-proof fit, adhesive remover wipes and spray for easy bag removal, flange extenders for extra security, and cranberry supplements or D-mannose to help reduce urinary tract infections.

- Organizing Your Supplies
- Prepare change kits in medium zip-lock bags with all necessary items like barriers, paste, adhesive remover, and a small washcloth.
- Use the same zip-lock bag to dispose of used items to keep odors contained.

- Hygiene and Infection Prevention
- Follow your wound nurse’s instructions carefully to keep the incision clean and dry.
- Stay hydrated to help flush your kidneys and stoma, which can prevent urinary tract infections.

- Early Mobility and Gas Relief
- Start walking as soon as you’re allowed; it helps with bowel function and healing.
- If you had laparoscopic surgery, trapped CO₂ gas might cause discomfort. Sipping mint cordial or warm drinks and walking can help relieve it.

- Mental and Emotional Tips
- Humor can be a great relief, so try to laugh whenever you can.
- A positive attitude, connecting with other ostomates, engaging in creative activities, and setting small goals can aid your recovery.
- Understand that adjusting takes time, but eventually, dating, work, sports, and travel will feel normal again.

- Long-Term Health Points
- Be alert for urinary tract infections, as some urostomates have experienced recurrent infections or even urosepsis years later.
- Keep yourself hydrated and consider using cranberry or D-mannose products if they help you.

- Encouragement from Veterans
- Many people with 15, 20, or even 50 years of ostomy experience lead active, fulfilling lives.
- They often say, "You got this," "It was easier than expected," and "Life goes on—better than before surgery.
See full discusison
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