Coping with a large parastomal hernia can be quite challenging, especially when it causes a constant feeling of pressure. This is a common concern for those who have undergone colostomy surgery and are dealing with a hernia that has grown significantly. Here are some helpful tips and insights from others who have faced similar situations:

1. Hernia Belts and Ostomy Support Garments
- Many healthcare professionals recommend using a custom-sized parastomal hernia belt. This can help alleviate the pressure and may slow the hernia's growth.
- It's a good idea to have a stoma nurse measure you for the belt, order it, and cut the opening for your appliance.
- Some people find these belts uncomfortable and prefer to wear them only when lifting or standing for long periods.

2. When to Seek Medical or Surgical Help
- It's common not to feel pain, even with a large hernia. Many live with noticeable bulges that don't hurt.
- If you experience persistent pressure, pain, or issues with your appliance sticking, it might be time to get a re-evaluation or a second opinion.
- If surgery is an option, choose a surgeon experienced in parastomal hernia repairs, as this can significantly improve outcomes.

3. Surgical Realities and Risks
- Be aware that repairs might fail, or the hernia could return, especially if the stoma is moved to a new location.
- Discuss with your surgeon the different techniques and materials used, such as mesh or gauze, and understand the risks involved, like mesh migration or bowel obstruction.

4. Conservative Self-Management Tips
- Try to avoid heavy lifting, straining, and violent coughing when possible.
- Maintaining a healthy weight and chewing food thoroughly can help minimize blockages that might push the hernia outward.
- Keep an eye on the hernia size and any changes in stoma function. If the stoma retracts or collapses into the hernia and becomes painful, seek medical help promptly.

5. General Consensus
- If the hernia isn't painful or causing issues with your appliance or bowel function, many suggest living with it.
- However, if it affects your quality of life, consider consulting a highly experienced colorectal or ostomy surgeon to discuss all available options, including the type of repair, the likelihood of recurrence, and the impact on future abdominal surgeries.