Topic Explanation:
The forum discussion is about individuals who have had ostomy surgery due to Crohn's disease or colitis and are now experiencing flare-ups or related symptoms years after the surgery. The original poster is asking if others have experienced similar flare-ups, what symptoms they had, and what medications were prescribed to manage the condition.
Advice and Insights:
1. Proctitis After Ostomy Surgery:
- Some individuals, despite having an ileostomy and no colon, have developed proctitis (inflammation of the rectum).
- Mesalamine (mesalazine) is commonly prescribed to manage proctitis. However, reducing the dosage can sometimes lead to a recurrence of symptoms, such as reddish coloration.
- One user mentioned using a mesalazine suppository in the morning and prednisolone in the evening to manage symptoms. Reducing either medication often leads to a return of symptoms.
2. Medication Adjustments:
- Some users have tried to reduce their mesalamine dosage (e.g., using it every other night or every three days), but symptoms like reddish coloration can return, prompting them to go back to daily use.
- The cost of mesalamine can be a concern, especially with certain insurance plans.
3. Avoiding Anti-Inflammatories:
- After ostomy surgery, some users mistakenly thought they could resume using anti-inflammatory medications like ibuprofen. However, this can lead to complications, and it is advised to avoid such medications. Tylenol (acetaminophen) is a safer alternative for pain relief.
4. Concerns About Further Surgery:
- Some individuals are trying to manage their symptoms without resorting to further surgeries, such as a proctectomy, especially after having undergone previous surgeries.
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