Crohn's Flare-Up Years After Ostomy Surgery

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rosebud621
Jul 27, 2024 2:38 pm

Has anyone had a Crohn's or Colitis flare-up years later with an ostomy? What were your symptoms, and what meds were prescribed?

Jayne
Jul 27, 2024 2:50 pm

Hello Rose Bud

 

Fortunately not - but others have had flare-ups - and I wish you the very best with managing such a situation. I regret I am not au fait with modern meds to manage a recurrence - I hope you are able to focus on remission ASAP.

 

Hug

 

Good luck

 

BW

 

Jayne

 

 

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Caz67

Well it's just coming upto a year since I had my emergency stoma. Since joining MAOM I have learnt all different kinds of ideas to help with the stoma. Not only that I have made a lot of good friends who I can talk to. The beauty of this site is it's not just giving tips and ideas we talk about anything and everything. So thank you for giving us a great site. XX

Mysterious Mose
Jul 27, 2024 3:50 pm

I haven't had a recurrence of colitis with my ileostomy (no colon). However, I did develop proctitis. I am using mesalamine to combat it, and it looks to be cleared up. I also have stopped using any sort of anti-inflammatory. I thought I could go back to using ibuprofen after losing my colon. Silly me.

Daniel

rosebud621
Jul 28, 2024 12:02 am

Thank you for your reply. Yes, I only take Tylenol.

Mysterious Mose
Jul 28, 2024 5:20 pm

I spoke a bit soon about the proctitis being cleared up. I have been trying to wean myself off the mesalamine by going to every other night, as suggested by my gastro PA. I still am getting some reddish coloration, so I am going back to daily. The problem is that the stuff is so damned expensive with my "insurance".

 

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Morning glory
Jul 29, 2024 7:13 pm

No, I haven't. I sure hope you feel better. Have you been diagnosed as having a flare-up of either?

Ismini
Aug 04, 2024 3:06 pm

I have the same situation, although I have to take a mesalazine suppository in the morning and prednisolone in the evening. Whenever I try to reduce either, I get the reddish coloring too. Very frustrating indeed.

Mysterious Mose
Aug 04, 2024 5:21 pm

I'm back in the reducing stage. Every three days right now. Fingers crossed. There is no way I want a proctectomy at my age and after the experience with my last "ectomy."

Daniel

Henry44
Sep 09, 2024 4:25 pm

Hi Daniel,

How is the proctitis now? Have the symptoms gone away?

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