Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,405 members
Sep 07, 2024

Wife struggling to cope with ileostomy diagnosis

This topic is about supporting a spouse who is facing the emotional challenges of an upcoming colectomy and ileostomy due to ulcerative colitis. The husband is concerned about how to best support his wife, who is experiencing significant emotional distress. Here are some pieces of advice and insights shared by others who have been in similar situations:

1. Acknowledge possible depression or grief:
- It's common for someone in this situation to experience feelings similar to clinical depression. Seeking professional mental health support, such as a counselor, psychologist, or psychiatrist, can be beneficial. Medication might also be considered if necessary.
- One person found that contacting the Digestive Disease Psychology Department at the Cleveland Clinic right after receiving similar news helped ease the transition.

2. Give loving space while staying present:
- Continue to send brief, reassuring messages like "I'm here and I love you," but understand that she might not respond immediately.
- Avoid pressuring her to engage in conversation; let her decide when she's ready to talk.

3. Involve medical professionals early:
- Inform her gastroenterologist or surgeon about her emotional state so they can recommend counseling or other resources.

4. Encourage peer support:
- Suggest joining local or online ostomy support groups. Many have found these groups to be life-changing.
- Some members are willing to share their experiences over the phone or through messaging apps.

5. Re-frame the surgery as a path to a better life:
- Many people have shared that the surgery brought significant relief from ulcerative colitis symptoms, allowing them to enjoy activities like travel, sports, and exercise.
- Emphasize that an ileostomy is a tool that enables a full life and does not define her identity.

6. Practical reassurance about body image and intimacy:
- Spouses have remained attracted to their partners, and being supportive during bag changes can strengthen the relationship.
- Modern garments can effectively conceal the ostomy; consider looking into specialized undergarments from Ostomy Secrets.
- Open and honest conversations, along with resuming intimacy when ready, can help rebuild confidence.

7. Day-to-day tips that members found vital:
- Learn stoma care together and attend demonstrations by an ostomy nurse.
- Maintaining hydration and electrolyte balance is crucial for those with an ileostomy.
- Home-health nursing in the early months can help ease embarrassment and teach necessary skills.

8. Patience and long-term outlook:
- Acceptance often takes time, even after surgery and healing. Remind her that she is still the same person you love and that the operation is lifesaving.

9. Key resources mentioned:
- Ostomy Secrets for adaptive undergarments.
- Cleveland Clinic Digestive Disease Psychology Department.
- General ostomy support groups, whether hospital-based, local chapters, or online communities.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,405 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

CORTISOL
PUNCTUATION
Early Christmas Giggle
Wearing an Ostomy Belt at Night: Is It Necessary?
Stealth Belt
Best Parastomal Hernia Belt for Women with a Muffin Top?
Hello! I'm a very recent ostomate.
Dealing with Noisy Ostomy: Tips and Advice Needed
Antibiotics and Ostomies: Seeking Advice and Experiences
Finding My Rhythm

New Topics

B. Withers-Be Kind 136
Has Anyone Tried OstoForm Flow Assist Flanges?
Talking to My Ostomy: Am I the Only One?
Ok so I discovered AI music creators
Driving
Hello
Happy Veteran Day
FADING MEMORY
Irritated Skin Near Belly Button
Post-Surgical Neuropathic Pain Around Stoma: Seeking Advice
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑