This topic is about a person who had a colostomy in January 2024 due to rectal cancer and is experiencing severe abdominal pain, hardness above the stoma, and changes in the stoma's appearance. They are seeking advice and confirmation from others who might have had similar experiences. Here are some insights and advice shared by others:
1. It is crucial to seek urgent medical care. Many people emphasize the importance of getting an immediate evaluation by a surgeon, stoma nurse, or hospital ER, as a dark or retracting stoma can indicate serious issues like ischemia or blockage.
2. Push for proper collaboration and second opinions. It's important for the gastroenterologist and surgeon to work together. If a gastroenterologist refuses to address stoma issues, consider finding another one. If imaging is inconclusive, request exploratory surgery, as some serious issues are only found during surgery.
3. Possible causes to rule out include partial or complete obstruction, adhesions, hernia, excessive tension on the bowel, inadequate blood flow, and radiation-induced bowel damage.
4. Be your own advocate by keeping symptom logs and insisting on answers. Trust your body signals; pain indicates something is wrong even if scans appear normal.
5. Post-surgery and activity advice: Recovery of strength can take many months. Fatigue, balance issues, and changes in hair and skin after chemo, radiation, or sepsis are common but usually improve. Returning to work as a farrier is possible with precautions like wearing a rigid stoma guard.
6. Pain management options include low-THC or CBD cannabis gummies or Rick Simpson Oil, which have helped some people when standard medications failed. It's important to check local dispensary options and start with a low dose to avoid unwanted effects.
7. Recognizing and relieving blockages: Early signs include cramping, abdominal hardness, and reduced output. Some people gently massage or press around the stoma to trigger output. Seek care if color changes or pain escalates. Staying vigilant with diet and hydration can help prevent recurring obstructions.
8. Emotional support is important. Feeling "robbed" of previous abilities is common, but setting incremental goals, moderating activity, and persistence can help restore confidence. Community encouragement is vital, with a reminder to never give up and to keep pushing for proper treatment.
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