The topic is about transitioning from a loop ileostomy to a colostomy. This change is being considered due to complications from radiation-induced colon ulcers that led to a fistula. The person is seeking advice and personal experiences about living with a colostomy, focusing on practical differences, stoma irrigation, and managing gas and odor.
Here are some helpful insights and advice:
1. Colostomy and Irrigation:
- Many people with a colostomy can irrigate their stoma every 24 to 48 hours, which can help them stay output-free for the rest of the day. Some even manage without a pouch by using stoma plugs or guards.
- It's important to check with a surgeon or stoma nurse to see if irrigation is suitable for your specific situation. There are many helpful irrigation tutorials available on YouTube.
2. Stoma Guards:
- Stoma guards are designed to protect the stoma from bumps, support hernias or prolapse, prevent pancaking, and help direct output during irrigation.
- You can find commercial stoma guards online, or you can make your own using simple materials from around the house or hardware store.
3. General Colostomy Management:
- Many people find colostomy care straightforward once they get the hang of it, with fewer leaks or blow-outs after the initial learning period.
- Normal activities, including travel, can usually continue without issues. For example, one person mentioned driving around Las Vegas without any problems.
- Gas and odor issues are often similar to or better than those experienced with an ileostomy, though audible gas noises can be a minor annoyance.
4. Gas and Odor Control Products:
- Products like Hollister m9 odor-eliminator drops can be added to the pouch to help with odor.
- Devrom chewable tablets can be taken to reduce gas and stool odor internally.
- Closed-end pouches with integrated filters can help vent gas, and using a two-piece system allows for changing the bag once or twice a day to keep the filter working well.
5. Diet Tips:
- It's helpful to identify foods that trigger gas and odor through trial and error. Adjusting your diet can significantly reduce these issues.
6. Learning Resources:
- YouTube is a valuable resource for learning both ileostomy and colostomy care techniques, including how to perform irrigation.
See full discusison