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Mar 16, 2009

Pregnancy Experience with an Ileostomy

This topic is about the experiences and care tips for women with an ileostomy who are considering or going through pregnancy. It covers concerns about fertility, changes during pregnancy, and how to manage stoma care. Here are some helpful insights and advice shared by others:

1. Pre-conception and Medical Follow-up
- It's important to consult with both a gastroenterologist and an obstetrician/gynecologist before and during pregnancy. They can help review your disease status, any scar tissue, strictures, medications, and your hydration and nutrient needs.
- Even if you've been in remission for a long time, regular check-ins with specialists are recommended because every case is unique.

2. Fertility and Conception
- Some women with an ileostomy conceive naturally, while others may need in-vitro fertilization, especially if they've had multiple abdominal surgeries.
- Although prior bowel surgery can reduce fertility, many women have successful pregnancies.

3. Stoma and Appliance Management During Pregnancy
- As your abdomen grows, your stoma may enlarge and protrude more. You might need to cut a larger opening in your wafer or skin barrier.
- In the later stages of pregnancy, it might be hard to see your stoma. Using mirrors or getting help from a partner can make changing your pouch easier.
- The increased curve of your abdomen can make the pouch more noticeable. Supportive or larger maternity underwear can help stabilize and conceal it.

4. Clothing and Underwear
- Standard maternity panties with added support usually work well. Look for styles that rise above the stoma or have soft waistbands that don't press on it.
- Many women continue wearing regular maternity clothes without needing special brands.

5. Nutrition, Vitamins, and Hydration
- A well-balanced diet and prenatal vitamins are essential. Some women increase their folic acid intake to 5 mg per day based on medical advice.
- Ileostomates may lose fluids and electrolytes more quickly, so it's important to monitor hydration and discuss any need for extra supplements with your doctor.
- If your nutrient absorption was adequate before pregnancy, your baby is likely to get what it needs. Keep track of your weight gain and lab results.

6. Possible Complications and Warning Signs
- Adhesions or an enlarging uterus can cause bowel obstructions. Seek medical attention if your output stops or you start vomiting.
- One member had emergency surgery for an obstruction at six months, but both mother and baby recovered. Early ER visits are crucial for persistent vomiting or if the bag stops functioning.
- Modified bed rest might be recommended if there are difficulties with amniotic fluid assessment or other issues.

7. Labor and Delivery
- Many women have successful natural, full-term deliveries, even after challenging pregnancies.
- Scar tissue can slow the baby's descent, and some women come close to needing a C-section but avoid it.
- Painless labor can occur if pelvic nerves were affected by previous surgery, so induction or closer monitoring might be necessary.

8. Emotional Support
- It's important to relax, follow your doctor's instructions, and enjoy your pregnancy. Sharing your experiences can also help educate healthcare providers who may not be familiar with ostomy pregnancies.
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