This topic is about managing hydration and pain during a hot summer day in New Zealand for someone with an ileostomy. An ileostomy can cause fluids and electrolytes to be flushed out quickly, leading to dehydration. Here are some helpful insights and advice for dealing with these challenges:
1. Dehydration can be hard to detect early on, as it might not show typical signs. Instead, it can cause extreme sleepiness and incoherence. Having someone listen for changes in speech can help catch dehydration early, prompting the intake of oral electrolyte fluids.
2. Without usable IV access, rehydration must be done slowly through a sub-cutaneous abdominal line, which can delay recovery. It's important to be patient and allow time for this process.
3. Pain management is crucial. While on palliative medication, it's wise to keep doses low to avoid sedation and breakthrough pain. Taking pain medication before the pain becomes severe can make it easier to manage.
4. To stay hydrated, place multiple water bottles around your living space as constant reminders to drink fluids.
5. If long infusion times are necessary for hydration, such as 11-hour IVs via a chest port, use this time for reading or other quiet activities to stay mentally engaged and distract from discomfort.
6. Reading can be a great way to pass the time and keep your mind occupied during extreme temperatures or lengthy treatments.
7. Although international travel is not possible for medical reasons, finding ways to stay connected with family, even hypothetically, can provide comfort.
8. The local climate rarely drops below –5 °C in winter and never snows, making a backyard pool a great addition for relief from the heat.
9. Conventional slow-release tablets may not be effective due to limited small bowel length, so alternative medication forms might be necessary.
10. Prescription medicinal cannabis oil, legal in New Zealand since April 2020, has been effective in reducing pain and sedation, though it requires out-of-pocket payment.
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