It's a beautiful summer's day today. We are going to have another hot day. So I need to make sure that I drink enough as I haven't been so dehydrated that my brain scrambles completely, and as my husband says, I become like a 2-year-old - for three years now. I'm not able to tell when I begin to get dehydrated, as I just become extremely sleepy, and I used to drink so much water that my ileostomy would kick it out as fast as it could, also taking my proper sodium/potassium ratio with it.
Fortunately, after 30 years of marriage, my full-time caregiver husband can tell by my speech if I need to start drinking my electrolytes - which I will do straight away. Having no IV access is a pain in the neck, and having IV fluid put in through a sub-cut line in my abdomen is slow and it takes a long time for me to become "me" again....
I am having a lot of pain. I'm on palliative pain medication, and since I'm a Dutch Kiwi, I'm stubborn, as I want to keep my pain meds as low as I can possibly get it without having to deal with breakthrough pain. But hubby talks sense into me and tells me that I need to take extra pain relief when my pain gets out of control. (Don't worry - I do not have a bowel obstruction ;-) ).
I am going to take it easy. Read for a while.
I hope you are all doing relatively well!

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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
Read what they had to say.
Read what they had to say.