The topic at hand is about dealing with a parastomal (or peristomal) hernia, which is a bulge that can develop around a stoma. This can be a concern for many, and the discussion revolves around understanding the success rates of surgical repair, the risks involved, and the experiences of others who have faced similar situations.
Here are some helpful insights and advice shared by others:
1. Evaluation First
- Surgeons typically consider operating only if the hernia is causing serious issues like obstruction, blocking output, or risking strangulation of bowel loops.
- Common concerns include high recurrence rates, infection, and the formation of additional scar tissue or adhesions.
2. Non-Surgical Management
- Using ostomy or hernia support belts can help prevent the hernia from getting larger and ensure the wafer stays in place. These belts should be worn continuously, except during showering or when changing the appliance.
- It's highly recommended to consult with an ostomy nurse to find the right belt and ensure a good long-term fit.
3. Surgical Repair Details and Expectations
- If surgery is needed, synthetic mesh is commonly used for repair.
- Some people have experienced mesh-related infections, while others have had successful outcomes. Complications can vary from person to person.
- Having had multiple abdominal surgeries can increase the risk of scar tissue, and each additional surgery might worsen adhesions.
4. Personal Experiences
- One person with a long-term ileostomy is newly diagnosed with a hernia and plans to follow their surgeon's advice for surgery.
- Another individual has managed a small hernia with a belt for 20 months and prefers to avoid surgery.
- Someone dealing with multiple hernias, including a parastomal hernia, must undergo surgery due to a bowel loop issue and emphasizes staying positive and trusting the surgeon.
- A long-term ostomate opted for non-surgical management after a friend's post-surgery complications and stresses the importance of thorough research before making a decision.
5. General Guidance
- It's important to research reputable medical sources about "parastomal hernia repair."
- Discuss your specific anatomy, potential risks, and the likelihood of recurrence with both your surgeon and ostomy nurse before deciding on surgery.
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