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Feb 08, 2025

Ileostomy Association UK Membership Feedback

The topic is about whether joining the Ileostomy Association (IA) UK is beneficial for someone with an ileostomy. Here are some helpful insights and advice for those considering membership:

1. Journals & Information
- As a member, you will receive regular journals from IA. These include reviews of ostomy products, general health tips, exercise advice, and personal stories from other members.

2. Local Groups & Meet-ups
- You can use the IA website to find a local branch near you. The value of membership often depends on the activity level of these local groups.
- Many branches organize informal meet-ups throughout the year, such as coffee gatherings or lunches. These events offer a chance for peer support, practical advice, socializing, and making new friends.
- Some groups have their own Facebook pages to facilitate easier communication.
- Efforts are being made by branch chairs and volunteers to revive or strengthen any inactive groups.

3. One-to-One Support
- IA provides a volunteer "buddy" system, allowing members to have private conversations with someone experienced for advice or reassurance.

4. Events & Product Access
- Members are informed about events hosted by ostomy manufacturers in their area. These events are great opportunities to see and try new ostomy bags and accessories.

5. Alternative / Additional Online Communities
- For those seeking more support, especially in areas with limited in-person options, online communities like the "Crohn's and Colitis UK Forum" and "Stoma Support Group" on Facebook are recommended.

6. Coverage in Scotland
- IA does have groups in Scotland. Interested individuals should check the IA website to confirm the locations of these groups.
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