Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,406 members
Mar 23, 2025

Seeking Advice and Support After Ileostomy Surgery

Coping with the aftermath of ileostomy surgery can be quite overwhelming, especially when you're just starting to adjust to life with a stoma. Here are some practical tips and supportive advice from those who have been through it:

1. Allow yourself time to heal. In the first few weeks, your stoma will change in size, so it's important to take things one day at a time. Don't rush into establishing long-term routines just yet.

2. Be prepared for a learning curve. It takes practice to get comfortable with changing appliances, emptying techniques, choosing the right clothing, adjusting your diet, and adapting your daily habits. Most people find that life feels more normal once they find a system that works for them.

3. Tips for preventing leaks:
- Check for leaks frequently, especially in the beginning.
- If you experience leaks, consider using a pouching system with a convex wafer or convex hole.
- To improve the seal and protect your skin, try adding a sticky barrier ring, like a hydrocolloid ring, around the stoma before applying the pouch.

4. Explore educational resources:
- The United Ostomy Association of America (UOAA) offers valuable information at www.ostomy.org.
- Ostomy101.com provides free videos and articles on topics like food, blockages, skin care, clothing, travel, exercise, and product options.
- Local UOAA support groups can offer in-person demonstrations and peer support.

5. Focus on mindset and self-care:
- It's normal to feel overwhelmed; many who have been through this remember feeling the same way.
- Stay positive, be patient with yourself, and celebrate small milestones. Giving your stoma a name or establishing a routine can make it feel less intimidating.

6. Don't hesitate to ask specific questions. The community is there to help, so feel free to post any concrete issues you have, such as appliance choice, diet, or skin care, to receive tailored advice.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,406 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Leakage Issues After Bladder Removal Surgery
HORNSWOGGLED
Travel Tips for Ostomates Visiting Switzerland
Metamucil Success: A Simple Suggestion from My New Gastro Doctor
How many remove their appliance to shower?
Hollister Drainable Pouch: How to Open the Lock and Roll Closure?
Need Advice on Managing Odor from Dad's Colostomy Bag
Colostomy and Air Travel: Seeking Advice and Tips
Ileostomy Reversal
Right or Left

New Topics

Old age
Canadian Disability Tax Credit
Swimming in the Ocean with a Stoma Exposed
B. Withers - Be Kind 53
Just Read The Note About Talking To Your Stoma
Colonoscopy Update and Mixed Emotions
Intrduction
I have had a BCIR for 35 years, never had a problem
UOAA Conference Photos
Anyone Else with a K Pouch?
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑