This topic is about finding the right accessories for managing a high-output ileostomy and rebuilding confidence and relationships at home. The person sharing their experience is using Hollister pouches with a belt but feels limited by them. They are curious about "clickable" systems and wonder if these might be a better option. An early discharge from the hospital led to an accident at home, which damaged an expensive comforter and strained their relationship with their fiancée. They are seeking advice on better appliance options and ways to reconnect with their partner.
Here are some helpful insights and advice:
1. Appliance Systems
- "Clickable" systems are two-piece setups, like Coloplast SenSura Mio Click or Hollister New Image. These have a wafer or flange that sticks to the skin, and the pouch snaps on like Tupperware. This allows you to change bags without removing the wafer, which can be handy for managing high output or if there are issues with the bag.
- Two-piece systems can be bulkier, so some people prefer to stick with a one-piece system for simplicity.
- Using a belt attached to the flange or belt loops, such as those on Hollister wafers, can help support the pouch, reduce leaks, and keep the appliance flat.
- Watching YouTube demonstrations of different brands and models can help you understand how each system works before you order samples.
2. Relationship and Emotional Health
- Focus on your fiancée by planning activities she enjoys, listening actively, and showing appreciation through actions rather than words.
- Acknowledge that you've been ill and dependent, and try to balance the relationship by giving as well as receiving support.
- Take care of yourself by resuming drawing or engaging in another self-care activity to rebuild your confidence.
- Consider seeking professional help, such as counseling for both partners or an antidepressant. Remember, depression is a treatable medical condition, not a sign of weakness.
See full discusison