This topic is about someone who had a colostomy and complete removal of the rectum and anus due to rectal cancer. Even after 15 months, they are still experiencing significant pain in the perineal area and are seeking advice from others who might have gone through similar experiences. Here are some helpful insights and advice shared by others:
1. It's important to consult your surgeon, colorectal consultant, or stoma nurse again. Persistent pain should be reassessed, as many people have suggested.
2. Discuss with your doctor the possibility of trying stronger or different pain relief options. Some people have found short-term opioids like oxycodone helpful when standard painkillers didn't work.
3. Long-term or phantom pain is not unusual. Some individuals continue to experience twinges or discomfort even years after their surgery.
4. Healing of the perineal wound can take a long time, often between 6 months to 2 years, especially if you had chemoradiotherapy. Expect gradual improvement rather than a sudden resolution.
5. Pay attention to when and where the pain occurs. For some, certain chairs or seating angles can trigger discomfort. Switching to more supportive or padded seating might provide relief.
6. Keep up with regular follow-ups. Some hospitals offer a colorectal nurse phone line for quick advice between formal appointments, which can be very helpful.